Aller au contenu Aller au menu Aller à la recherche

Logo du site

Accueil > L’association > Tr1 - English Version

Tr1 - English Version

The Association’s missions and history

Our missions
to raise awareness of the syndrome amongst healthcare professionals and general public
to support medical research programs
to constantly inform about the medical treatments and different therapies capable of bringing comfort to the patients
to practically help families through advice, support , actions and financial support
to organize fundraisers and find sponsors
Our history
A team of geneticists, Marie-Françoise Croquette and Bruno Delobel, doctors from (...)

Lire la suite

Site réalisé avec SPIP | Squelette BeeSpip

Mis à jour le mercredi 26 avril 2023