Accueil > L’association > Tr1 - English Version
Dernier ajout | 31 octobre 2016
Publié lundi 31 octobre 2016
Our missions
to raise awareness of the syndrome amongst healthcare professionals and general public
to support medical research programs
to constantly inform about the medical treatments and different therapies capable of bringing comfort to the patients
to practically help families through advice, support , actions and financial support
to organize fundraisers and find sponsors
Our history
A team of geneticists, Marie-Françoise Croquette and Bruno Delobel, doctors from (...)
Site réalisé avec SPIP | Squelette BeeSpip